This nearly didn't happen (Blog 2)
- wwilkes8
- Apr 8
- 2 min read
Just after Christmas I had a really bad pain in my right buttock.
I attended A&E at Monkland's hospital using my crutch to keep me upright. I saw a doctor who gave me some co-codamol and sent me home referring me to my orthopedic doctor as the pain was in my pelvis.

The next day the orthopedic doctor got in touch and referred me to my hematology team.
They thought that my Myeloma was coming back. I was sent for an x-ray, and after that I
had an MRI scan, after all that it was found that I had some new lesions on my Pelvis.
My Myeloma was defiantly on its way back. my paraprotein's were up and my pain was very bad. Originally when I first got Myeloma 10 years ago, my paraprotein levels were in the 40s.
until recently they were that small that they couldn't be measured. But with this new outbreak they were only up to 3 & 4 on whatever scale they are measured on, but that caused the problems.
I was taken into hospital to change my treatment. I was taken off my usual treatment of Isatumabib, and started a course of Elranatamab. The new drug was given in smaller doses for the first couple to make sure I didn't get any side effects during the change from one to the other. I was in hospital for just under 3 weeks and during that time I had a couple of nights of tremendous pain. during those nights I came to the decision that the holiday was off. Wilma was getting to the same conclusion as well.
After talking to Doctor Mitchel she said to me that May was still 12 weeks away, and anything could happen with Myeloma in that time.
After being home and seeing the doctors at the clinic, they told me that the paraproteins levels had gone back to the unmeasurable status and they assured me that everything should be okay to go on our round the world trip. After sorting out our insurance we will be on our way on 1st May.
Thanks to all the staff on ward 15 who got me through the change of medication. Doctor's Mitchell and Patterson for their input, Dr McIntyre who has been checking on my progress when I go to the clinic on a Monday and the staff on the day ward 11 where my new medication is administered.



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